Great news on Gwyn!
This was from Grandma Lynne today :)
Kelli;
Gwyn is doing much better ... the fevers finally broke ... and in less than 10 hrs she broke out in measles all over ... so on top of the congenital neutropenia ... the seizure disorder and sepsis and her kidneys not being able to keep up ... she was one really sick kiddo. She will be comming home soon now that she has stablized ... the doc said she probably broke out inside first. Basically as he put it with the neutropenia every thing that she gets is magnified a hundred fold because her immune system is so compromised. So to expect frequent repeats ... they are looking into ways to boost her immune system ... will have to see what the genetic specialist says.
She is eating a little bit and drinking on her own now ... so each little bit is a major step in our eyes. I did get a little sleep
Thank everyone on the prayer chain for all the support and prayers ... they have been deeply appreciated and needed ... There were several times there I thought we had lost her ... she was so sick and so weak ... we have definately been getting little miracles each hour!
Have a good "day off"!
Lynne
Kelli;
Gwyn is doing much better ... the fevers finally broke ... and in less than 10 hrs she broke out in measles all over ... so on top of the congenital neutropenia ... the seizure disorder and sepsis and her kidneys not being able to keep up ... she was one really sick kiddo. She will be comming home soon now that she has stablized ... the doc said she probably broke out inside first. Basically as he put it with the neutropenia every thing that she gets is magnified a hundred fold because her immune system is so compromised. So to expect frequent repeats ... they are looking into ways to boost her immune system ... will have to see what the genetic specialist says.
She is eating a little bit and drinking on her own now ... so each little bit is a major step in our eyes. I did get a little sleep
Thank everyone on the prayer chain for all the support and prayers ... they have been deeply appreciated and needed ... There were several times there I thought we had lost her ... she was so sick and so weak ... we have definately been getting little miracles each hour!
Have a good "day off"!
Lynne
3 Comments:
Hi, Kelli. I found you through Addie's prayer request and hung around to read all your posts. I'll be adding you to my prayer list and to my bloglines. I'm adding Baby Gwyn also. So much to pray for, yet so much more to be thankful for.
God bless you!
The relief you all feel must be TREMENDOUS! It sounds like she still has a hard road to travel, though--please continue to keep us updated. And how old is she, by the way?
Brenda -- thanks, I apprecaite that nd will pass along your comments to Gwyn's family as well. I know her grandma reads the blog ehre so she will be blessed.
Sarah - we are sooo relieved. She will be 2 in October and is cute as a button from what her grandma says. Thanks -- and we are praying you through this next week. Health and no aging :)
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