Tuesday, January 23, 2007

Ok, not the fashion statement I was hoping for....

I have been on home peritoneal dialysis since May 8, 2006.

This involved having a 2 foot rubber tube setup surgically implanted next to my belly button. About a foot of it hangs out. It's lovely, really- like the umbilical cord was never removed. It SCREAMS "hey look at me" when on occasion it falls out of it's secret hiding place and swings around my knees at the WalMart. Really, it does.
Well, NOW ... since I've conquered my fear of looking like an elephant gone wrong in public, and because frankly there was this little thing about my dialysis not working anymore -- causing me to lose another 50% function of the remaining kidney -

I get to get one of these :

The bumpy part on the right in the middle is the "cuff" - all the tubing on the left of the picture will be inside the jugular near my heart (yeah- thrilled on that note) while the lovely blue and red ensemble will dangle softly from under my collarbone and lay on my chest:



Can you say TLC'S WHAT NOT TO WEAR people????

We're thrilled to pieces, we are- the kids can't wait to see how I manage to go into public without drawing stares galore (they are young pre- and teens, ya know) and frankly, I'm lucky to walk and chew gun at the same time without falling over. Now? It's a sitcom waiting to happen.

And J? He's threatening to put in RV hook-ups to attach me to in the bedroom. Now THAT folks is dedication and love personified. Jealous, arent you? I know you are.

I'll be having emergency surgery to input this tomorrow morning at 12 noon MT here at Deaconess Billings, and will be there 'til Thursday or Friday. They will be doing hemodialysis to make sure everything is in sync. Then, we start the regular routine of Tuesday, Thursday and Saturday with a 3-5 hour dialysis session at the hospital every week. And did I mention the ONLY opening they have is 7:15am. I mean, holy strawberries batman! We're in a jam. ACK!

So it will quiet around here for a few days in this corner of the blog-o-sphere. Frankly, I hadn't planned on celebrating the ole celebration de' birthday at DBC. I thought a nice dinner and seeing Happy Feet or Marshall would be abit more fun. But, I'm learning to celebrate those birthdays any way I can :) 42 of 'em baby! 4-2.

J has sworn to give Boomama a call with updates, if anything happens. But, heck! God's over this whole thing. So, hopefully, it's all quiet there, too.

Y'all have a great week :) See you in the funny papers.

41 Comments:

Anonymous Tonya said...

You all are in the prayers of so many. Hope you can feel the warmth of these fervent prayers as God wraps his arms around your entire family!

~tonya
www.thereisaseason.net

12:47 PM  
Blogger Barb said...

Very chic! I want one! OK, kidding. I definitely do not want one and I'm sorry you have to have one. And the going back and forth to the hospital 3 times a week will be a drag. But you sound like you've accepted it and are trying to stay upbeat about it.

This is all bringing you closer to that transplant. I can't begin to imagine the party bloggityville is going to throw for you when that happens.

No matter what I'm doing tomorrow, at exactly 12 noon sharp I'll stop and pray for you. Gotcha covered, Girl. xoxoxo

1:00 PM  
Blogger Susanne said...

Keepin' on praying for your Kelli! May the peace of God surround you while you are in the hospital!

1:32 PM  
Anonymous Anonymous said...

Wow Kelli,

You just made my day! I LOVE your attitude, it makes me just want to kick myself! You've got me smiling now! I hope all goes well tomorrow!

Keep the faith. Your absolutely right, God's in control and nothing happens outside of His will!

Blessings,
Heather

1:37 PM  
Blogger lightshines said...

This is my first time commenting. I just want you to know that you are in my prayers.

1:43 PM  
Blogger owlhaven said...

Praying for your whole family!

Mary, mom to many

1:47 PM  
Blogger Kim said...

Praying for you,Kelli! It is great that you have such a sense of humor about this whole thing,but it must be very difficult for you.

Praying here,

Kim

2:11 PM  
Blogger Michelle said...

I just read about your surgery over at Barb's blog and was coming over here to offer up my prayers! Hope you have a pile of some good books to read!

3:46 PM  
Blogger Sandy said...

It's a different situation from yours, to be sure, because every kidney patient is just as individual as her personality, but my best friend, who is 36 and has congenital kidney disease, and who is also not a candidate for transplant, has been on hemodialysis 3x a week for two years. His time has been gradually adjusted so he's in for 4 hours now, instead of the 5 he start out at, and has been doing well on it. God willing, this will continue, but I want you to know that it is possible to continue living a (somewhat) normal and healthy life on hemodialysis. If you're already on a transplant list, and are relatively close to receiving a kidney, then hopefully, you will be fine. It is possible, and I know it's frustrating and disappointing for you, but hemodialysis isn't the end of the world. Good luck, and my thoughts are with you.

3:51 PM  
Blogger crygibb said...

You are in my prayers as you go through this surgery tomorrow.

3:54 PM  
Blogger Theresa said...

Kelli, I have another friend who has been on dialysis for 5 years. She has this same type of port and she says it actually is much better than the old one! (She's not a transplant possibility due to other health issues, so she's just trying to "buy" as much time as she can by having the dialysis.) We'll be praying for you and the family.

3:55 PM  
Blogger Pam in Colorado said...

I'll be praying, praying, praying. God never leaves His throne and I know He has His eye on you!!!

We'll be glad to hear from you when you are settled back at home in a couple of days.

4:16 PM  
Blogger Addie said...

Praying for you Kelli!

Much Love!

4:55 PM  
Blogger ChupieandJ'smama said...

Keeping you and your family in my prayers!

5:00 PM  
Blogger Heidi said...

Praying for you and your family.

5:08 PM  
Blogger Brenda said...

Kelli, if anyone can wear one of those things with style, it's you.

You're in my prayers, dear sister-friend. xoxoxo

5:29 PM  
Blogger Melanie said...

Praying for you and asking for prayer on my blog. Will keep informed via BooMama.

6:09 PM  
Blogger mommy to four j's said...

You are in my prayers May our Lord give you the comfort that you need and wrap His loving arms around you. Love, Char

6:25 PM  
Blogger BooMama said...

He'd better call me!

And you have been on my heart all day...even now I have tears in my eyes reading this, because I know that despite your incredible attitude, it's a scary time. Just know that you'll have more people praying for you than you can imagine.

I'm praying.

6:26 PM  
Blogger Ashleigh said...

I've been praying all day, Kelli. We've dealt with dialysis in our family and are only too familiar with the "routine." Our little family is daily lifting you up to our Heavenly Father.

6:33 PM  
Blogger Jessica said...

I am praying for you and your family. My father-in-law has Allport's Disease and just got his stint for Peritoneal dialysis last week. I am so sorry that you have to go through this! I will be praying that God sends a donor SOON so you don't have to deal with hemo long!

7:27 PM  
Blogger PastorMac's Ann said...

Will be praying. And will be praying for many many happy returns of your b-day.

7:46 PM  
Blogger jtcosby said...

Praying for the surgery to be efficient and as painless as possible. I believe you could start a fashion trend...we could all get necklaces made to look like your tubing...what do you think? We could come up with a good name, put the necklaces on and take pictures and post them on the blogs?? I'm thinking we could sell them too?

Anyway, praying in TN.

8:38 PM  
Blogger Stacey said...

You are SO covered in prayers!!! I will be lifting you up all week. I am hoping for no news - because no news is good news.

Bless you.

8:41 PM  
Blogger Susan said...

You and your family are in our thoughts and prayers. Happy Birthday, Kelli!

9:01 PM  
Blogger Linda said...

You sweet thing. You have such an incredible spirit. I wish I could just be close enough to give you a huge hug. In my heart I am. My Bible Study begins tomorrow, and we will pray for you. I will continue to pray until you are all well and have a brand new kidney. God is just beginning to do a miraculous thing here.
Praying for your family as well.
We send you lots of love.

9:22 PM  
Blogger Laurel Wreath said...

Girl you are always starting new trends here =) I got your back..praying!!

9:59 PM  
Blogger Joyful Days said...

You are on my heart and in my prayers.

10:35 PM  
Blogger PEZmama said...

praying for you!

11:07 PM  
Blogger Mishel said...

Continuing to pray for you Kelli. : )

11:26 PM  
Blogger Beckie said...

You are in my prayers Kelli. Just keep praising God.

4:24 AM  
Blogger Especially Heather said...

Oh Sweet Kelli, I just read about your changes this morning, and have tears streaming down my face. I can so understand your emotions and your fear. You have been FIRMLY placed at the foot of our savior, be secure in that knowledge and in the promise that He will never leave you nor forsake you.

You are His chosen Beloved.

Praying fiercely for you-
Heather

6:19 AM  
Anonymous Robin said...

I found you via Randi. Many prayers are going up for you.

6:20 AM  
Blogger Blessed Beyond Measure said...

Kelli, I pray for you every single time God calls you to mind, which is often. xoxoxo

7:56 AM  
Blogger momrn2 said...

BUMMER! I was hoping you could avoid hemo altogether! Sounds like your spirits are remaining up considering. Hang in there and know there are many, many praying you through this!

I continue to pray that your kidney is right around the corner! Also praing now as you begin hemo.

8:36 AM  
Blogger Kountry Mama said...

I admire your attitude! God IS in control of your life, and He will bless you for giving Him that control. I know you won't read this until after your surgery, but I wanted you to know that I'm praying for you. My prayers haven't stopped since I found out about your situation. Keep the faith. We're all here keeping it with you. Today I'm praying that He'll give you peace and not fear, for He is with you!

10:13 AM  
Anonymous Anonymous said...

Tell the docs you want to learn to do your dialysis at home. It's not hard to learn, MUCH better for your body (you can dialyze more frequently - keep you in better shape pre-transplant), and you can do it whenever you want (some people even do it at night while sleeping), not when they tell you to come in. The folks that own the clinics likely wont tell you about this option because it's not as good for them financially, so you have to be pushy and ask to be trained, or just go to another center that will train you. Training takes a few weeks. There's a nonprofit website that can take you through all the options http://forums.homedialysis.org/forumdisplay.php?f=10 , and the chatroom will have answers for just about any question you can think of. Good luck.

11:05 AM  
Blogger JenMom said...

Another prayer interceding on your behalf!

8:04 PM  
Blogger Lyric said...

Praying diligently for you and your family.

11:15 PM  
Blogger Kathleen Marie said...

Your sense of humor is awesome! You are in my prayers and I have you on my prayer chain (several of them in fact!)

God Bless Your Sweet Heart! and kidney ☺

5:51 PM  
Blogger Overwhelmed! said...

Best of luck, Kelli. You remain in my prayers!

10:50 PM  

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